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Adult living with CAHLacrisa
From the South
Lacrisa is passionate about community, connection, and craft. Before moving into the corporate world, she built a name for herself as a bartender and mixologist, serving celebrities, politicians, and community leaders along the way. These days, she channels that same energy into her career, her community, and the people she loves.
Lacrisa became a WTC@H?! ambassador because her mother didn’t have a lot of CAH resources when she was growing up, and she wants to change that for others. She looks forward to sharing her story, contributing to research, and advocating for expanded treatment options for those with adrenal insufficiency.
She wants girls growing up with CAH to know: “You can do anything you put your mind to, and you are beautiful. Live life with no limits and hold your head up in rooms as if there are no ceilings. CAH does not have to hold you back from enjoying womanhood.”

Parent of children living with CAHSuzanna, Duke (DJ) & Idalynn
From the West
Suzanna loves to travel, try new things, and lead by example. Her greatest motivation is her children—she’s dedicated to giving them a better childhood and building something that lasts for generations. DJ is into games, books, and learning. Idalynn loves playing with friends and reading as many books as she can get her hands on.
Suzanna became a WTC@H?! ambassador because awareness is half the battle—if people don’t know CAH exists, it’s as if it doesn’t.
She also wants to remind caregivers that their mental health matters too. You can’t advocate for your child if you’re running on empty. She hopes that by speaking up now, she shows DJ and Idalynn how to one day advocate for themselves.

Parent of a child with CAHKristina
From the Midwest
Kristina is a full-time working mom of two girls who keeps busy with school activities, rescuing secondhand treasures, and needlepointing in her spare time.
Kristina became a WTC@H?! ambassador because she never wants her daughter to feel ashamed of something that makes her who she is. CAH is part of her story, and the more it's shared, the more awareness grows.
She wants other parents in the CAH community to know, when her daughter was born, and the diagnosis came, she never imagined feeling as confident as she does now. "I'm so confident in her ability to thrive and do everything and anything she wants. She is an absolute ray of sunshine in our lives."

Parent of a child with CAHTyannah
From the South
Tyannah's heart is rooted in helping others and being the best she can be for her three children, who inspire everything she does. She also happens to be a twin, though her sister claims seniority by a whole seven minutes.
Tyannah is a WTC@H?! ambassador because she believes rare diseases deserve more than silence. A CAH diagnosis can feel scary and overwhelming, but she wants others to know it's manageable—and that there are people and resources ready to help along the way.

Parent of a child with CAHJenny
From the Midwest
Jenny is happiest outdoors, especially at the cabin on the lake surrounded by family. What most people don't know is that she's a three-time USA National Champion competitive water skier in her age division—a fun detail that tends to catch people off guard.
Jenny became a WTC@H?! ambassador because awareness leads to understanding, and understanding leads to better care. She wants to break down misconceptions, amplify patient voices, and make sure no one feels alone in their journey.
Her words to those living with CAH? "Your experience matters, and your voice is powerful. Whether you're newly diagnosed or have been managing CAH for years, you are not alone."

Parent of a child with CAHMeri
From the South
Meri loves music, especially singing, and is thrilled to have a new singing partner in her daughter, Mila, who has already picked up the same love for singing and dancing. Her two children are the center of her world and push her to be the best version of herself every day.
Meri became a WTC@H?! ambassador because she had never heard of CAH before Mila was born. Navigating the diagnosis was one of the hardest parts of the journey, made harder by medical providers who weren't always equipped to speak confidently about it. She hopes that by raising awareness, more families will have access to better information and resources from the start, especially those who are brand new to this world.
Her encouragement to the CAH community? "We were chosen to carry CAH as part of our story. Learn to embrace it, and you might even start feeling proud. I know I'm proud to be a CAH mom."

Parent of a child with CAHRon (Landon's Dad)
From the Midwest
Ron is all about family—whether he's out on the water, hunting, or on the ice coaching his kids' hockey games. What most people don't know is that he was a gymnast in his younger years and walked onto a Division 1 university diving team with zero diving experience. That kind of fearlessness has carried through everything he does.
Ron became a WTC@H?! ambassador to share his story and remind others that things are going to be okay. When his child with CAH wanted to play hockey, Ron became a coach—so he could always be right there on the bench if he was needed.
His advice to the CAH community? "Walk with your head on a swivel, but relax and enjoy the path it might take you."

Teenager living with CAHLandon
From the Midwest
Landon is passionate about the outdoors, whether he's boating, fishing, or hunting. He loves to unwind with his guitar and is always up for a game of hockey, golf, spike ball, or cornhole—even building the occasional board himself, just for fun. With a strong work ethic and a love for staying active, Landon is driven to motivate others to push themselves and stay moving.
Landon is a WTC@H?! ambassador because he wants to make things a little easier for others with CAH. He knows it’s not always simple, especially in uncertain moments, and hopes to help by answering questions and sharing what he’s learned.

Parent of a child with CAHKrista (Landon’s mom)
From the Midwest
Krista’s greatest joy is spending time with her family, especially watching her husband and sons play hockey or planning their next vacation together. She’s hosted three CAH Awareness Walks and is passionate about living a healthy, active life—and helping others by sharing her family’s story.
Krista’s advice to others in the CAH community? “Talk to people about CAH. No, you’re not alone. Use your parent gut because you know your child better than anyone and you’re their best advocate.”

Adult living with CAHDamon
From the South
Damon is always on the move—whether he's in the gym, on a hiking trail, offroading, hunting, or training in martial arts. He'll take on just about anything outdoors, except wasps. Those are a hard no.
Damon became a WTC@H?! ambassador because the CAH community deserves the very best in treatment and care, and he doesn't want it to be overlooked.
His message to the community? "We defy the odds. It's good to manage expectations, but we can always shoot for the stars."

Twenty-something living with CAHJason
From the West
Jason has a passion for design—he brings ideas to life through 3-D modeling and printing. He’s traveled to over 10 countries and dreams of creating products people use every day. The thought of building something meaningful keeps him inspired for what’s ahead.
Jason became a WTC@H?! ambassador to help reassure parents of kids with CAH. He knows how overwhelming a diagnosis can feel, and he hopes his story can ease some of that anxiety.

Twenty-something living with CAHAstrid
From the Northeast
Astrid enjoys traveling, diving into books, and challenging friends to board games and chess. A fun fact? She used to be a competitive wrestler. Inspired by the support of her friends and family, Astrid stays motivated to face each day with strength and positivity.
Astrid isn’t sharing a photo and is using a pseudonym—and that’s on purpose. As a woman with CAH, she wants to be seen for who she is, not defined by assumptions about her condition.
She became an ambassador to share that message: CAH doesn’t define you. She also encourages parents to start the conversation early, so kids grow up feeling informed, empowered, and never alone.
First off, don’t worry. You’ve got this! Just be sure you’re able to self-monitor. That’s really one of the best things you can do when managing CAH without the help of your parents. Stay aware of how you feel and know what to look out for.
For instance, if you have a headache, it can be tempting to say, “I just need to drink more water,” but you need to be sure it’s not because of something related to your CAH, like missing a dose. You might just need more water, or your body may need more salt. Learning the difference is huge. The more you pay attention to how you feel—and stay on top of your treatment—the more confident you’ll be managing things on your own. And if you’re really not sure, don’t be afraid to reach out to your doctor’s office.
And honestly, that feeling of knowing you can handle it yourself is pretty great.
When kids are really little, they can’t explain what’s going on in their bodies. So parents kind of have to figure things out for them. But as they get older, that has to change: you’ve got to let your kids talk.
And just as important, you have to listen to them without getting worried. Because if you look like you’re stressed or fearful every time your kid tells you that something’s wrong, they might stop speaking up. And that’s the last thing you want when you’re dealing with CAH.
Just hear them out and then work through the situation together. That helps them learn that speaking up about how they feel leads to getting the help they need. That will give them confidence to be able to advocate for themselves, and it’s something they’ll carry with them for the rest of their lives.
It’s really key to love yourself, no matter what. I know that may sound cringy, but it’s real, because being a teenage girl is already a lot. CAH doesn’t get to decide who you are. It’s just a part of your story, not the whole thing.
But my more practical advice is to take your treatment seriously and be very precise about taking your meds. Because the more closely you follow your regimen, the less likely you’ll be to experience symptoms like excess hair growth and irregular periods—which, let’s be honest, can be really annoying.
I suggest setting an alarm on your phone to remind you to take your medications on time and to be sure to have them with you when you’re out. Being strict about taking your meds may feel like a burden at first, but once you incorporate it into your routine, it’s just another thing you’ve got handled.
If you’re traveling with CAH, the biggest thing I’d say is: always keep your medication in your carry-on. Not your checked bag. If you lose a T-shirt, that’s fine. If you lose your meds, things can go south very quickly.
I also carry a letter from my doctor—on official letterhead—with a contact number, confirming that my medication is prescribed and medically necessary. That’s been really helpful when going through security, especially if you’re carrying something like injectable hydrocortisone, which has a syringe and needle.
I’ve had extra security checks, but I’ve never had anything seized. It’s just a hassle—especially if you have a short layover—so it’s better to be prepared.
Just a heads up: our ambassadors aren’t medical pros. They’re here to share personal experiences, not medical advice. For anything health-related, talk to your doctor.

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Thank you!
More to come—we’ll be in touch shortly.